Community Engagement Program

Community participation and engagement are critical in the conduct of scientific research.
HPTN Community Engagement Program

There is mutual benefit to communities and researchers when both parties work together throughout the scientific research process. 

The LOC Community Engagement Program (CEP) team leads and facilitates implementation of HPTN’s community engagement approach. Our approach relies on community advisory structures such as Community Working Groups (CWGs) and site Community Advisory Boards (CABs) to represent the participant community by raising research-related issues or concerns that may impact the participants, community or study. The LOC CEP supports partnerships between communities and researchers throughout the entire research process and engages with communities at the research sites, as well as with other key internal and external stakeholders through regular tele/videoconferences, protocol team meetings, site assessment visits, study-specific trainings and workshops.

External stakeholders include advocacy groups, civil society groups such as pastors, traditional healers, tribal chiefs, and Ministry of Health/Department of Health representatives. Workshops provide an important opportunity for researchers and community representatives to exchange information and build capacity related to the Network’s scientific agenda (sub-section D). The LOC CEP staff assesses, expands and adapts the community engagement approach so that it remains culturally appropriate and relevant to the diverse communities we serve.

Community involvement forms the pillar of our Network activities where, ultimately, we are guided by and accountable to the community served. We are at our best formulating research questions from community-driven priorities in partnership with community members. Community engagement – where community is empowered to bring its values, strengths, wisdom into every aspect of the research process from conception to dissemination – makes research possible. Nearly 40 years into the HIV epidemic, the fundamentals still apply – sound, scientific evidence is real, and in community we trust

HPTN CWG Chair

How We Engage Study Communities 

The HPTN has committed to community participation and collaboration as a key component in the HPTN's goal of effective public health research. As a result, a partnership of people who are affected by and living with HIV will have input into the ideas that are developed, how the studies are designed, and the implementation of the actual research.

Learn more about community participation in HPTN studies

Frequently Asked Questions

 

Community engagement investment should not only be nice jargon but actioned for HIV and health research process, displaying reassurance of sustainability and forward-thinking. These steps guarantee a long-lasting impact on communities’ livelihoods and their health when research outcomes are successful.

HPTN CWG Co-Chair